CERGAS Seminar "“Dare to share”: actual problems and prospective solutions for open science in Italy."

Open Science encompasses a set of principles, practices, and goals designed to make every stage of the research process more transparent and accessible. Its aim is to ensure that scientific knowledge is findable, accessible, interoperable, and reusable (FAIR), thereby accelerating progress and maximizing the benefits of research for society. A central pillar of Open Science is open access—not only to publications, educational resources, software, and hardware, but also to diverse forms of scientific data. However, data sharing raises significant ethical, legal, and practical challenges, including the protection of sensitive or identifiable information, limited resources and time for proper data curation, the lack of common standards and licenses, difficulties in anonymization and consent, and risks of misuse. Despite these obstacles, Open Science is widely considered a “point of no return.” It has been formally endorsed by the European Union (where it is mandatory for EU-funded projects), by UNESCO (through its 2021 Recommendation on Open Science), and by numerous countries and research institutions worldwide. This seminar will provide an overview of Open Science in Italy, highlighting national and local initiatives, the challenges researchers face (based also on first-hand experience), and potential solutions—many inspired by successful international endeavors.

Speaker:

Dr Valente graduated in Medicine and specialized in Neurology at the Catholic University of Rome, and then obtained her PhD in Neurogenetics at the Institute of Neurology, University College of London. She is Full Professor of Medical Genetics at University of Pavia and Head of Neurogenetics Research Center at the IRCCS Mondino Foundation, in Pavia, Italy. She coordinates the Italian National Virtual Institute of Parkinson Disease, within the Network for Neuroscience and Neurorehabilitation funded by the Italian Ministry of Health, and is a member of the Scientific Committee and Monogenic Network of ASAP Global Parkinson’s Genetic Program (GP2). She is also part of the Scientific Committee of Mariani Foundation. 
Her main research interest is Parkinson Disease genetics, and over the years, she contributed knowledge on the mutational spectrum, phenotypes and molecular functions of several Parkinson Disease genes. A second, relevant line of research focuses on the genetic basis of neurodevelopmental disorders and brain malformations. She is author of many scientific articles and reviews on international journals, with a Scopus h-index of 74 and over 30.000 citations. Her research is funded nationally and internationally, including an ERC Starting Grant.

Link zoom:

https://unibocconi-it.zoom.us/j/98917793743?pwd=E1SOOoaGpKtgwtkr8GeWAbYTtwhUUJ.1

Meeting ID:

989 1779 3743

Passcode:

539359

Lunch at the end of the meeting: for those willing to participate in person, click here before the 13th of September.